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See,
when I had more treatments in front of me each time it seemed like
there was a safety net: “if
my cancer isn’t gone just yet, I’ve still got two more treatments
to knock it out.” Now I’m on my own. Frankly, I think I’ve
been pretty good about watching my diet in the past few years, so I’m
not sure there’s much I can change there. I can certainly do better
about exercising. It doesn’t really provide comfort that the causes
of lymphoma remain vague at best, bordering on unknown. So there isn’t
some lifestyle factor I can point to and say “if I just cut this
out of my diet or my life, I won’t get lymphoma again.”

It didn’t help me forge an optimistic demeanor to have been
feeling worse since the last chemo session. I’ve been much more
tired and sore, for instance. Dr. Seifter says the fatigue is cumulative,
and he’s
right. Also, my hands and feet have been numb. Not in the “can’t
feel anything at all” way but rather in the “cold and insensitive” way.
When I held my fingers in certain ways, like when grasping a pencil or
cupping my palm to pour pills into it I would cramp up (had terrible
leg and foot cramps, too) though that seems to be getting better with
each
passing day. But I’ve also had a couple of other issues that have
kept my attention…
Around the time of my fifth treatment in November I developed a rash
that eventually covered about 30% of my legs, and was spreading to my
back and
was also on my arms. I’ve never been so itchy in my life. I’m
sure everyone I talked to during that time got tired of me complaining,
but perhaps I can put this in perspective by saying that I was seriously
weighing whether it would be less uncomfortable to simply take a steak
knife and carve away the affected areas, or to continue to apply creams
and lotions and wait for the swelling to go down. It turns out this rash
may have been a reaction to an antibiotic that was part of my regimen
of pills. So my doctor stopped those and also had me take more of my
steroid
pills, and that did seem to cut down most of the rash pretty quickly,
though small vestiges of it continue to pop up. For several days, though,
I was
taking an ice-cold shower every night before bed, and nothing is more
relaxing before going to sleep, and another ice-cold rinse when I woke
up. I was
also sleeping with ice packs tucked under my back and against my legs,
which probably sounds horrible but actually did provide some relief so
I was able to rest. The downside of that practice was waking up at 4
a.m. to discover that they had all melted, and having to go downstairs
to get
replacement packs out of the freezer so I could make it through the rest
of the night.
Just before Christmas I developed a lump in my arm that’s been worrying
me as well. It’s about the size of a marble near my elbow on my forearm,
with another smaller mass about an inch down toward my hand. If I hadn’t
just gone through six sessions of chemotherapy I’d think it was swollen
lymph nodes. But my doctor looked at this and concluded it was a superficial
blood clot (which I believe in this case means “near the skin” more
so than “of little consequence”) and now after taking large
doses of Advil for three days it is being reduced in size and pain level.
Apparently the superficial clots rarely cause serious problems: it’s
the deep ones that end up in your lungs or brain and sometimes kill.
Anyhoo, all of this fatigue and discomfort and general yuckiness have
made me fairly cranky. Edna’s had a lot to put up with. One afternoon
I marched into the room and announced that we were canceling all our magazine
subscriptions (and we only get two or three) because I was sick of having
all these damned magazines around the house! I’ve softened my view
on that issue since then. Another day I claimed that I’d be eager
to replace our kitchen sink if we ever remodeled, and the next day I had
no memory of saying so and can’t imagine why I’d ever have
thought that to be a reasonable idea. So I guess along with being cranky
I’ve been somewhat deranged. Great.
[edna: still planning on a groovy farm-style sink;
also, spiked egg nog coupled with an “are you talkin’ to
me?” response helps deal with
his outbursts.]
Now, after all this whining I know you’re wondering: is there any
GOOD news in that sad man’s life? Sure there is.
This week I had a CT scan, which apparently shows (I have only heard
in a phone call from Dr. Seifter, and haven’t seen the full report or
the scans yet) that all the visible traces of my lymphoma are gone. As
he told me when I started treatment under his care, such results won’t
necessarily mean that there’s not some small microscopic vestige
of this lurking in my system somewhere, so I can’t properly claim
to be 100% cured. In fact, the doctor pointed out early on that the only
time he can say anything with certainty is when it’s bad, as in “I’m
100% certain there are new tumors growing.” But this latest test
does seem to indicate strongly that the chemotherapy has been very effective,
and also virtually eliminates the possibility that the lumps on my arm
are newly-inflamed cancerous lymph nodes after all.
But the CT scan also showed that I had a polyp in my intestines that
had not been seen before, so I get to start the new year, as one friend
put
it, “staring a colonoscopy in the eye.” The doctor says that
most of the time these polyps turn out to not to be a problem, but it
still has to be checked.
We
had a nice quiet Christmas, and a number of friends and relatives checked
in and several sent nice gifts. I was delighted to have my one
of my oldest
and dearest friends since I moved here come over. Amy Deputy stopped
by one afternoon and we had a nice time together. She and I worked together
for years at The Baltimore Sun, and it is due to Amy that I began shooting
weddings, so she’s had a strong influence on me from nearly the
day we met. Look for more pictures of her in the Basement Gallery when
I update
that in the next couple weeks (I’m hoping to add a couple more
people to round out the collection.)
I have also been back in touch with my former yoga teacher, one of the
nicest people on the planet, and it turns out he’s had an interesting
autumn as well after a bus in which he was riding in the Peruvian Andes
was struck by a boulder (which from the picture I saw appears to be about
the size of, oh, another bus) and he and others were injured. Shocking
as that was, I’m glad to report that he says he is recovering nicely
as well. Throughout my summertime back troubles and during all this chemotherapy,
yoga has been one of the few things I could practice that helped me feel
better, even in those times where all I could do was lay on my back and
do a couple of very basic stretches and poses. I’m sure it will
be a big factor in my ongoing recovery in the months and years ahead,
and
much of that is due to him. Thank you, Moses.
In all, I expect 2007 will be better than 2006 — by any definition
it almost HAS to be — and Edna & I wish you all good health and
peace and prosperity for the new year. Likely there will be a few more
updates on this site (look for an announcement that I’ve posted pictures
from the colonoscopy in the “gallery of gory pictures” — or
perhaps the “Basement Gallery” is more appropriate!) and if
things go as I expect those updates will all be of a positive tone. And
again I must thank all of you who have kept up with my rantings and have
sent your messages and other expressions of support. That has really helped
me through some tough times, and I’m dearly touched to have people
like you in my life.
Happy New Year, everyone!
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