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This helps bring home the point to me that there are many different kinds of cancer. Just about everyone I’ve met or chatted with has some close friend or relative who has cancer or beat it, or didn’t. But it does make you realized just how common this is, when it has touched just about everyone you’ll ever meet. It seems that for many people, all the kinds of cancer are just lumped together in to one, so perhaps some better education is needed for the general populous.
In an interesting twist to my own situation, I was told last week that I actually have a different kind of cancer than what they thought before. Instead of “Diffuse Large B-Cell Lymphoma,” the diagnosis of which came from the hospital where I had the lymph nodes on my neck removed, the pathology lab at Johns Hopkins reports I have “Follicular Large Cell Lymphoma with Diffuse Features.” Apparently they look very similar under the microscope, and my doctor told me that they did the test four times because they didn’t want to overturn the earlier diagnosis, but that now they’re pretty sure.
Turns out
the treatment are the same for each, but there are some slight differences
in how they work in the body. For instance, the “large
B-cell” kind is an aggressive lymphoma, meaning it can grow and spread
rapidly, but can also be killed rapidly. The follicular lymphoma is called
an “indolent” type, which means that it typically grows slower
(it might have been in my body for years) but can at some point become
aggressive, which may be what happened to me, and in some cases it may
be harder to wipe out completely. After looking up “indolent” in
the dictionary, Edna and I have come to calling this my “Lazy Lymphoma.” The
other downside to this is that there is a chance that it will reappear
10–15 years down the road, even though it’s apparently
fairly easy to treat if you catch it early enough. There have
been so many of those friends who have been sending me cards and letters
and calling, and I can’t tell you what that has meant
to me. I’m saving all the cards in a big pile, and some
of my favorites are the hand-made ones. One charming card came
from my young friend Grace
down in Georgia, who had the wonderful advice that I should
watch more TV and eat more ice cream to get well. Believe me,
I’m following
THOSE doctor’s orders. I’ve also gotten a wonderful
response from the many friends I’ve made that started
out as clients! One couple sent me a card from their honeymoon — even
though I didn’t
end up shooting their wedding — and another great organization
in Baltimore called Friends
of the Family sent me a picture of the whole staff that everybody signed.
The Basement Gallery is now up! Enjoy. There will be many more additions as more of you stop by in the coming days and weeks. Generally I seem to be doing a little better each chemotherapy session (knock on wood) so I will increasingly be able to have visitors if all goes smoothly. Even on my weakest days, I’m trying to do a few laps on the deck. My neighbors must think there’s some sort of bizarre guard duty going on as I slowly circle the railing. If you do want to visit call me before you come, because I’m still sacking out a couple hours each day for my nap, and now that I’ve got my iPod all loaded up I may not even hear you if you’re knocking at the door.
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