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About 70%
of my hair fell out in just a few days during the second week. It was
like watching a time-lapse film of what happens to
most men over 30 years. Now all that is left is the grey, and it seems
to be more resistant to going. Frankly, I’m thinking about going ahead
and shaving it if something doesn’t happen soon, because it’s just this
wisp of a covering. Also after probably 13 years of having a beard I finally
had to shave that, because it was drying out (and also falling out) and
it actually hurt whenever I touched my face or, say, lay on a pillow. Days
later it still freaks me out to feel that smooth skin on my chin. My doctor
says that eventually even my eyelashes and eyebrows will go, but Edna has
promised to crochet me some brows when they do.
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Also during this time I’ve had a fair amount of company. My brother John
took several days and came over from London to hang out. Much of what we
did was sit around and talk, but that was very nice. And then my son came
out for the weekend from college in Indiana, and we had a lot of fun together.
It was great seeing them both. For all of you local folk, I encourage you
to give me a call and stop by sometime. Chances are I might be awake from
my nap. My other brother, Frank, had a business trip in DC on my birthday
and came up for dinner afterward, which was fun. These visits also spurred
me to set up and gradually refine the “basement studio” that
I’ve created, which has a lot of potential to yield fun photos
of future visitors. Watch for those photos in a gallery coming soon!
No, really.
Soon.
Chemotherapy itself was a little easier and quicker this time (by about
an hour) and again that’s partly because I knew what was coming. Each time
that I’ve gone in I’ve met up with Chris from Baltimore and
her dad Ray, who is nice enough to come with her and stay while she gets
her treatment. They also stop at a local bakery each time and bring in
goodies for everybody, so I have to figure out a way to make my schedule
coincide with theirs. Nothing like a fresh cheese danish while you’re
watching Rituxan® drip through the line into your arm. But the other
patients who are there are also nice, and each time we’ve all gotten
into conversation at some point.
Frankly, the brightest part of the chemotherapy sessions is Anna and Jacqueline,
the two oncology nurses that I’ve dealt with so far. They are amazingly
caring and considerate and friendly and patient and did a lot to ease my
fears about going through this. Ray said it best in my last session when
he told Anna, “what I would hope for you is that if you ever get
sick you have someone as nice as you taking care of you.” That's
true for both of them. There are little stuffed angels hanging on each
rack with the chemo drugs when they’re being given to you, but the
real angels are the ones checking the drip-rate and taking temperatures.
So, what is my day-to-day routine like? Frankly, I don’t have one.
Every day is different, and my level of energy varies even from hour to
hour sometimes. One moment I’ll feel like I could paint the house,
the next I’ll feel like if I don’t lay down I’ll collapse.
But a few things do overlap each day. For instance, I take a lot of pills.
Some days I have to take as many as 15, not counting stuff like Tylenol.
Other days it is as few as 5 or 6. Edna made a little chart that hangs
on the cabinet door in the bathroom so I remember what to take when. She’s
good at stuff like that. Even with that it helps me to inform her when
I’ve taken something, especially the ones that I have to take a couple
times a day.
I try to get a little work done each day, and I do have stuff to do even
though I’m not shooting any new assignments or events. One thing
I’m trying to do is to keep up with everyone who is calling and emailing
me, and I’m hearing from old friends and colleagues that I haven’t
talked with in years. So if you’re one of those people that I haven’t
gotten back to, I probably will when I get up from my next nap.
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