| |
One of my early symptoms before I was officially diagnosed was fatigue,
and at the time we thought it was mildly amusing that I was hunkering
down for a two-hour nap each day. I’m still enthusiastic about
taking naps, but I’ve also been more watchful for any little sign
that my cancer might be coming back. When I met with Dr. Seifter in mid-January
I asked if there was anything I should be watching for, and he told me
that I was being so watchful that there was almost no chance any abnormality
would escape my notice.
Early in February I felt well enough to go see my parents again,
and on that same trip we spent time with Edna’s family in Texas. Throughout
my treatment her family had been very supportive and it had been much
too long since I saw them. In January just about everyone on her side
of the family had gone to the Philippines for a memorial service and
celebration in honor of Edna’s grandmother, who had died last year
while visiting relatives on the island of Panay where most of the family
originally hails from. We didn’t go because of the cancer, and
it was a heartbreaking decision for me especially because I have not
yet made it there and would have greatly enjoyed participating in the
festivities. We did get to see a lot of fun photos from the trip, and
we’re eagerly waiting to hear whether the pregnant pig in the
village of Gama will give birth to a piglet named “Edna” or whether
it will turn out to be a male and be called “Thomas.” Fame.
Sweet.

In all this I’ve been trying to ignore every little itch and
bump and gurgle as much as I can, while weighing the possibility that
every
little bump and itch and gurgle MIGHT actually be some new sign of
cancer. But one big thing that showed up in the latter part of February
was some
fairly intense back pain, and frankly that had me quite worried. It
could have come from shoveling snow, which I did both at my parents
house in
New Mexico and then twice when we returned to Maryland. The symptom
that sent me to the doctor in the first place was back pain, and this
was
in the same place and harsh enough to get my attention.
I knew if I called my doctor about this, if it really was something
serious, he probably wouldn’t be able to tell me much without
ordering up new CT scan or similar test. As luck and proper scheduling
would have
it, I already had a PET scan planned for March 2nd. Thus, for several
days after getting this pain I could only wait my turn and fear the
worst.

While I was in Texas my old roommate Dean
Rutz called. He passed on the disturbing news that my friend
and colleague Steve Deslich had taken a turn for the worse. Longtime
Basement Gallery fans will recognize Steve as
one of the earliest visitors to be photographed
but aside from being a good guy and having a wonderful wife and incredibly
cute son Steve also was a fellow Cancerista. As far as cancer goes,
Steve was Yoda to my Luke, having had a series of brain tumors and
several
surgeries and chemotherapy in the past few years. He has been through
a lot more than I even want to imagine.
I’ll confess that I can’t claim to be a really close friend
of Steve, but every time I’ve ever spent time with him I have
found him to be one of the warmest, funniest guys I’ve had the
chance to meet. At our first encounter some years back Steve sat down
next to
me at a party and opened with a line that I can’t repeat here
(because I know my mom is reading this), but I can tell you it was
hilarious and
I’ve wished for the right opportunity to use it since then. But
unless you’re carrying around a valise filled up with lawn-bowling
gear it’s just too hard to work in to your average conversation.
More important, when I was going through my own treatment for cancer,
Steve showed an interest in me and exuded a calm confidence about
his own situation that gave me a lot of reassurance that I would
be able
to make it through the difficult times I was having. With scars on
his head and having learned over the summer that his tumors had reappeared — again— Steve
was jovial and sincere and displayed an attitude as healthy and pleasant
as the fittest of people I’d ever met.
Dean told me in his phone call that the latest news on Steve wasn’t
good. Late in 2006 some new tumors had developed in his brain that would
not be removable by surgery. So when I got back from the southwest I
went over to visit Steve and Kathy, and found him in a hospital bed in
the middle of his living room. By this time he had pretty much lost the
use of his left leg because the tumors were putting pressure on his nervous
system. His left arm was also quite weak, and his right trembled with
just about every task he tried. But we had a great talk and he didn’t
once betray any notion that he wouldn’t get better. At one
point Kathy walked in to the room and was surprised to hear us talking
about
American History rather than about cancer.

One recent Saturday a bunch of friends from Steve’s office, McClatchy-Tribune
Photo Service, had a party for him, complete
with barbeque ribs flown in from Kansas City.
It was a nice gathering of about 15-20 people, counting several members
of Steve’s family from Ohio who have been spending time with
him in recent weeks. After most of the crowd left a few of us lingered
to
talk in the living room, and that stretched late into the afternoon.
The several of us talked about movies, culture, kids, satellite radio
and watched as his son Min flitted in and out playing with all the
guests.

Some people have been worried about how I would react to knowing
that Steve was dying. I’m not sure that my own cancer makes this any
more worrisome than if I were healthy. For several years I’ve
been a student of Buddhism, wherein you are constantly taught to focus
on
death and change and impermanence. The reason: doing so teaches you
to live more fully, to be more compassionate to all living beings,
all of
whom will die. So as I’ve faced my own cancer I’ve known
about the possibility that it could (or may still) kill me and that
fact has never really bothered me. Granted, I am not eager to suffer
and linger
in pain, but the passing from life to death isn’t something that
I dread. I don’t know what may happen after I do cross that threshold,
but I can at least try to live a decent life. I’m not nearly
as compassionate or altruistic as the many lamas and teachers I’ve
learned from, but maybe I’ve done a little good here and there
and I’ve been able to have some interesting adventures. That
may be about as much as anyone can really hope to accomplish, and from
what
I can tell Steve has done that even more richly than I. He and I did
talk some about whether having cancer caused either of us to have any
insights in to death or the “secrets” of life, but we basically
concluded that it did not. “If there was an epiphany,” Steve
laughed, “I missed it.”
That Saturday (Feb 24th) turns out to have been, as Kathy tells
it, Steve’s
last good day. On Sunday he began having seizures, and in order
to control them it was necessary to use strong sedatives.
As the
calendar turned
to March he became unable to take any food, and was only receiving
pain medication and the sedatives. Edna and I visited on Monday
and his family said
that he responded some to different stimuli, but essentially he
was winding down.
Steve passed away Tuesday night, March 6th, in his home. Wednesday would
have been his 36th birthday. My thoughts and prayers go out to his family
and friends, and
I know it meant a lot to him to have those people around
him in
his last days.

And the PET scan I had last week? Turns out to be completely clear.
No sign of cancer anywhere. I just need to stretch more if I’m
gonna be shoveling snow. And certainly before I do any lawn bowling.
|
|